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INTERNET RESOURCES |
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INTERNET RESOURCES |
WWW:[General Medical] || [Transplantation] ||
[Transplant Centers] || [Regional Transplant Resources]
[Other Internet Resources - non-WWW] ||
[Suggest a Resources]
| Absolute Authority on Transplant Pharmacology | For information: Natalie Serkova, PhD |
| A site that does not lack for self-confidence. Selective directory of Internet resources on transplant pharmacology, primarily for professionals, but also targeted for patients under immunosuupressive treatment. | |
| American Association for the Study of Liver Diseases | For information: aasld@aasld.org |
| Information on association activities, plus links to liver disease resources. | |
| American Red Cross Tissue Donation | For information: info@usa.redcross.org |
| General information on tissue donation, along with questions and answers for potential donors. | |
| American Share Foundation | For information: Webmaster |
| "This World Wide Web Project is a part of our deep commitment to Children and Adults who are waiting for a second chance at life, those who have received a Transplant, their families and the medical professionals who care for them." | |
| American Society for Artificial Internal Organs | For information: 74761.404@compuserve.com |
| "Promotes development, application and awareness of organ technologies which enhance quality and duration of life." | |
| American Society of Nephrology | For information: asn@sba.com |
| General organization overview, plus meeting, grant and publication information. | |
| American Society of Transplantation formerly American Society of Transplant Physicians |
For information: Webmaster |
| Society activities, plus an online conference center for members. | |
| American Society of Transplant Surgeons | For information: Webmaster |
| Society activities, plus an online conference center for members. | |
| Bone Marrow Transplant Information at OncoLink | For information: Editors |
| Links, articles, and basic information for patients. | |
| Blood and Marrow Transplant Newsletter | For information: Editors |
| Bimonthly issues of this patient-oriented newsletter are available from January 1994 onward. This was previously a part of the NYSERNet Breast Cancer Information Clearinghouse website. | |
| Children's Liver Alliance | For information: Lisa Carroccio |
| Largest pediatric liver disease and transplant foundation. | |
| Children's Liver Alliance Inc. (Australia) | For information: Megan Kinsey |
| Support network for the families and friends of children with liver disease. | |
| Children's Organ Transplant Association | For information: cota@cota.org 800-366-2682 |
| An advocacy organization for children in need of organ transplants. Helps organize fundraisers and public awareness campaigns. | |
| Children's Liver Association for Support Services | For information: C.L.A.S.S. 26444 Emerald Dove Dr. Valencia, CA 91355 Toll-free:1-877-679-8256 |
| Information, support, and services for families coping with pediatric liver disease and transplantation. | |
| Coalition on Donation | For information: 804-330-8620 |
| Highlights national and local public-awareness campaigns that encourage organ and tissue donation. | |
| Diseases of the Liver (CPMCnet — Columbia-Presbyterian Medical Center) | For information: Howard J. Worman, MD |
| Links to articles and papers on liver diseases. | |
| E-Neph | For information: Doug Lynner |
| Provides complete nephrology clinical articles, renal care news, and directories of renal transplant facilities and dialysis centers. | |
| Emory NephrOn Line | For information: Stephen Pastan, M.D. |
| This page from the Emory University Renal Division includes RealAudio segments of lectures and presentations. | |
| End-Stage Renal Disease: Choosing a Treatment for You |
For information: Kathy Kranzfelder |
| An online brochure from the National Institute of Diabetes and Digestive and Kidney Diseases that explains kidney failure and treatment options. | |
| Eurotransplant Foundation | For information: not available |
| The Eurotransplant Foundation is a non-profit organization whose main aim is to encourage organ transplantation. Eurotransplant coordinates international exchange of donor organs across a region with 116 million inhabitants. Transplant centers and tissue-typing laboratories as well as donor hospitals in Belgium, the Netherlands, Luxemburg, Germany and Austria share in this effort. | |
| First Family Pledge Campaign | For information: milt@ussm.net |
| An educational initiative of the American Society of Transplant Surgeons, designed to promote family discussion of the importance of organ and tissue donation. | |
| A Gift of Life: A Page From the Life of a Living Organ Donor |
For information: Lynn Chabot-Long |
| Information about, and samples from, a book by an organ donor, for persons seeking to learn about organ donation from the donor's perspective. | |
| U.S. HRSA Division of Transplantation | For information: RDean@hrsa.dhhs.gov |
| Background information on solid organ and bone marrow transplantation, including policies, glossaries, publications, lists of organizations, staff contacts and other Internet resources. | |
| Hypertension, Dialysis and Clinical Nephrology (HDCN) | For information: jtdaugir@medtext.com |
| An online journal addressing renal disorders and treatment, hypertension, dialysis, and clinical nephrology. | |
| International Bone Marrow and Cord Blood Donor Search | For information: Info@CRIR.org |
| Request searches for donors, and access related Web sites. | |
| International Society for Heart and Lung Transplantation | For information: Amanda Rowe |
| Heart and lung transplant statistics, and other related information. | |
| International Society for Organ Preservation | For information: Max Polyak |
| ISOP is the first society dedicated to advancing the science and technique of organ preservation for transplantation. | |
| International Society of Nephrology | For information: Michele Hales |
| Organization information, meeting list, articles and more. Also includes a downloadable portion of the ISN Video Legacy CD-ROM (Windows and Macintosh formats). | |
| International Transplant Coordinators Society | For information: Leo Roels, CPTC |
| Calendar of events, links, and information about the ITCS. | |
| LifeNet | For information: webmaster@lifenet.org |
| A non-profit Organ Procurement Organization. | |
| Lori's Transplant & Related Resource Page | For information: Lori Noyes |
| A collection of transplant-related links, with special emphasis on donors and their families. | |
| Medicine, Markets and Bodies | For information: organwatch@uclink.berkeley.edu |
| A project based in University of California,
Berkeley and affiliated with the Columbia University branch of Organ Watch, in
which a team of anthropologists, human rights activists, physicians, and social
medicine specialists will "explore the social and economic context of organ
transplantation, focusing on the human rights implications of the desperate,
world-wide, search for organs. They will carry out original ethnographic and
sociological research as well as human rights investigations, and the findings
will be broadly disseminated. The project will also establish and promote a
human rights agenda for dealing with violations of the bodily integrity of
vulnerable populations." Related site: Organ Watch |
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| MedWeb Transplantation | For information: Comment Form |
| A large collection of links to a variety of transplantation topics. | |
| National Kidney Foundation | For information: 30 East 33rd Street New York, NY 10016 1-800-622-9010 |
| An overview of the foundation and its various projects. Also includes the Electronic Kidney online newsletter. | |
| U.S. National Institute of Diabetes and Digestive and Kidney Diseases | For information: Kathy Kranzfelder |
| Official web site of the NIDDK (National Institutes of Health). In its mission to conduct and support research on kidney, urologic, hematologic, digestive, metabolic and endocrine diseases, as well as on diabetes and nutrition, the NIDDK also provides health information for the public. | |
| National Transplant Assistance Fund | For information: 1-800-642-8399 Fax (610) 527-5210 e-mail: NTAF@transplantfund.org |
| "National Transplant Assistance Fund is dedicated to providing financial, social and emotional support to transplant candidates. NTAF counsels patients regarding location and cost of transplant centers and other possible sources of financial assistance." Site includes educational articles and donor information. | |
| NefroNet | For information: Marc Granados |
| A Spanish-language nephrology resource. | |
| Nephron Information Center | For information: Stephen Z. Fadem, MD, FACP |
| Searchable resource covering dialysis, kidney transplantation and urology. Includes information for patients as well as clinicians. | |
| Organ Watch | For information: contact not online |
| Affiliated with the Center for the Study of Society
and Medicine at Columbia University, this team of social scientists, transplant
surgeons and human rights activists is "exploring the ethical dimensions of
organ donation and procurement practices around the world. It is conducting
investigations and proposing recommendations that aim to promote public trust
in organ donation and to ensure that organ procurement is done according to
ascertained, and evolving, ethical principles." Related site: Medicine, Markets and Bodies |
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| RENALNET | For information: Webmaster |
| A kidney disease resource that includes a multi-room conference center, a searchable dialysis unit directory, employment resources, and other links. | |
| Statline | For information: 1-888-881-7828 Fax: (303) 758-5148 Webmaster |
| This service generates custom reports on the recovery and distribution of organs, eyes and tissue. Site includes a monthly newsletter. | |
| Total Renal Care, Inc. | For information: (310) 792-2600 Fax: (310) 792-8928 |
| A provider of dialysis and related services, with facilities throughout the U.S. | |
| Transplant Immunology | For information: Joanna Sharrocks |
| Contains a mixture of original and review articles, covering all areas of clinical and experimental transplantation pathobiology and immunosuppression. Includes an international calendar of events. | |
| TPIS: Transplant Pathology Internet Services | For information: Michael A. Nalesnik |
| This is a comprehensive resource for the transplant physician with an emphasis on pathology. Current classification schemes, examples, didactic organ-specific pages, cases conferences, lectures, and other features are available at no charge. | |
| TransWeb | For information: transweb@umich.edu |
| A comprehensive collection of transplantation resources. | |
| United Network for Organ Sharing (UNOS) | For information: Contact Page |
| Transplantation facts, news, public policy and calendar of events. | |
| United States Renal Data System | For information: valarieb@umich.edu |
| An information clearinghouse on end-stage renal disease, including research guides and reference tables. | |
| University of Wisconsin Organ Preservation Solution | For information: vreug@surgery.wisc.edu |
| Information on cyrobiological technology for preservation of tissues and cells. | |
| Yale University (gopher) | For information: Webmaster |
| A variety of documents concerning organ donation and transplantation. Among the topics covered are legislative issues, religious and ethical positions, xenotransplantation, public opinion polls, and even organ trafficking myths. | |
NOTE: All resources are peer-reviewed prior to inclusion on this page. Submission of a resource does not guarantee its inclusion here, and inclusion or omission of a resource is at the sole discretion of CenterSpan.
Please be aware that medical advice, diagnoses and physician references cannot be obtained from this site.