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HEPC Registry: Follow-up Record

You will need the patient's Social Security Number. No update can be made otherwise.


{short description of image}Patient's SSN:
(ex: 123-45-6789)
{short description of image}Date of primary transplant:

{short description of image}Is the patient alive:  Yes  No
If No, then date of death:
Cause of death:
Infection Cardiovascular Failure  Graft Failure
Respiratory Failure Malignancy Recurrent Liver Disease
Sepsis Trauma/Accident Unknown
Other - Explain:

{short description of image}If patient is alive, is graft described in original data still functioning?  Yes  No
If no, cause of graft loss:
PNF HAT  Infection Recurrent Hepatitis C Acute Rejection
Chronic Other Death Unknown
If other, then explain:

{short description of image}Date of retransplant:

{short description of image}In the last 12 Months:
Did the patient undergo biopsy?  Yes  No

Field Names 1st Biopsy 2nd Biopsy 3rd Biopsy 4th Biopsy
Date
The biopsy allowed Normal
Acute Rejection
Chronic Rejection
Hepatitis
Normal
Acute Rejection
Chronic Rejection
Hepatitis
Normal
Acute Rejection
Chronic Rejection
Hepatitis
Normal
Acute Rejection
Chronic Rejection
Hepatitis
If biopsy showed acute rejection Mild
Moderate
Severe
Mild
Moderate
Severe
Mild
Moderate
Severe
Mild
Moderate
Severe
If biopsy showed hepatitis Hep C Alone
Hep C w/rejection
Chronic active hep
Fibrosing Cholestatic Hep
Cirrhosis
Hep C Alone
Hep C w/rejection
Chronic active hep
Fibrosing Cholestatic Hep
Cirrhosis
Hep C Alone
Hep C w/rejection
Chronic active hep
Fibrosing Cholestatic Hep
Cirrhosis
Hep C Alone
Hep C w/rejection
Chronic active hep
Fibrosing Cholestatic Hep
Cirrhosis
If hepatitis, portal inflamation None
Mild
Moderate
Severe
None
Mild
Moderate
Severe
None
Mild
Moderate
Severe
None
Mild
Moderate
Severe
Piecemeal Necrosis No
Yes
No
Yes
No
Yes
No
Yes
If Hepatitis, Fibrosis None/Peri Portal
Bridging
Cirrhosis
None/Peri Portal
Bridging
Cirrhosis
None/Peri Portal
Bridging
Cirrhosis
None/Peri Portal
Bridging
Cirrhosis

{short description of image} Did ANY biopsy reveal Hepatitis C with rejection? No  Yes

If Yes Date of Biopsy:

Treated with Steriods: No  Yes

Normalization of LFTs: No  Yes

{short description of image} Most recent Labs (date):

SGOT:
SGPT:
GGTP:
T. Bili:
Creatinine:

HCV RNA: x10^5   Date of RNA:

{short description of image} Present Immunosupression Dose:

Tacrolimus:
Cylcosporine:
Prednisone:
Azathroprine:
Mycophenolate mofetil:

{short description of image} Additional Steriod boluses over past year (total number of grams):

{short description of image} Treated with interferon: No  Yes
If Yes, date Started:
If Yes, date Ended:  
Improvement with therapy: No  Yes

{short description of image} Treated with ribavirin: No  Yes
If Yes, date Started:
If Yes, date Ended:  
Improvement with therapy: No  Yes

{short description of image} Other Therapy:

     

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